Huntington’s Disease Rehabilitation and Care Support in Perth

At Compass Care Group, we take time to truly understand your needs, strengths, and goals so we can support you in living with greater independence and confidence. Our personalised, reliable services are designed to empower individuals with Huntington’s Disease in Perth to navigate daily challenges with dignity and control. Huntington’s disease is a progressive condition that can significantly affect physical, cognitive, and emotional functioning. If you or your loved one requires ongoing support, our highly trained Support Specialists are equipped to provide the expert care needed to maintain comfort, stability, and quality of life. With extensive experience, the ability to offer 24/7 support, and a strong community-centred approach, Compass Care Group stands out in delivering compassionate and dependable Huntington’s Disease support in Perth.

  • What is Huntington's Disease?

    NDIS Huntington Disease

    Huntington’s Disease is a rare genetic disorder that causes neurocognitive symptoms in varying degrees, but which progresses over the course of illness. It affects the central nervous system which includes the brain and the spinal cord. 

    If you or your loved one is living with Huntington’s Disease, it can affect many areas of daily life. However, with the right support and treatment from Compass Care Group, individuals can maintain a fulfilling lifestyle, stay engaged in everyday activities, and enjoy improved well-being for as long as possible before the condition progresses.

  • Why Choose Compass Care Group for Huntington’s Disease?

    • Specialised Expertise: Their caregivers receive thorough training specifically in neurodegenerative support, addressing the unique motor function, cognitive, and emotional health needs of HD patients.
    • Person-Centred Approach: Care plans are highly tailored and adaptive to the individual’s evolving condition, focusing on personal preferences and daily rhythms rather than rigid institutional schedules.
    • Emphasis on Home Environment: Compass Care Group believes that a home setting nurtures a person’s sense of self and that home care helps preserve dignity and a sense of belonging, which facilities struggle to match. They help prepare the home environment for safety and accessibility, from fall prevention to specialised equipment recommendations.
    • Comprehensive Support Services: Beyond physical assistance, they offer extensive emotional support and communication techniques, including non-verbal cues, to help patients and families navigate the psychological challenges of the disease.
    • Family and Community Integration: They provide respite care for family caregivers and work to ensure patients remain engaged and active within their communities through partnerships with local disability-friendly organisations and tailored programs.
    • Navigation of Support Systems: For clients in Australia, they offer significant assistance in navigating government funding programs like the National Disability Insurance Scheme (NDIS) and My Aged Care, helping families maximise their entitled benefits.

     

  • Benefits of Choosing Compass Care Group for Huntington's Disease

    • Specialised Expertise: Compass Care Group’s professionals have specific, in-depth knowledge and experience in managing the complex symptoms of HD, which can range from motor dysfunction and cognitive decline to psychiatric issues.
    • Coordinated Multidisciplinary Team: Care is managed by a team of experts working together to address all aspects of the disease. This team often includes neurologists, psychiatrists, physical and occupational therapists, speech pathologists, dietitians, and social workers.
    • Personalised Care Planning: Treatment plans are tailored to meet each patient’s unique needs and health goals, adapting as the disease progresses.
    • Symptom Management: The team focuses on managing various symptoms to maximise quality of life. This includes strategies and medications to control chorea (involuntary movements), address mood and behavioural issues, and manage physical difficulties like swallowing problems and balance issues.
    • Social Work and Counselling: Assistance with financial planning, insurance issues, connecting with support groups, and managing family conflicts.
    • Therapeutic Interventions: Access to physical, occupational, and speech therapies to maintain independence and function.
    • Emotional and Spiritual Support: Services to help cope with the emotional and psychological burden of the disease.
    • Caregiver Resources: Programs designed to reduce caregiver burden and burnout, offering practical resources and a “listening ear”.
    • Access to Clinical Trials: Depending on the specific facility, patients may have opportunities to participate in clinical trials for promising new treatments.

     

  • Get the Support You Deserve: Connect with Our NDIS Expert

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  • Examples of Huntington’s Disease

    Huntington Desease Support in Perth
    • Involuntary movements such as jerking, twitching, or fidgeting (chorea).
    • Difficulty with coordination leading to unsteady walking or frequent falls.
    • Slowed or impaired thinking, including trouble planning, focusing, or making decisions.
    • Behavioural or mood changes like irritability, anxiety, or depression.
    • Speech difficulties, including slurred or slowed speech.
    • Swallowing challenges increases the risk of choking.
    • Changes in personality such as impulsiveness or social withdrawal.
    • Trouble performing daily activities independently as the disease progresses.
    • Weight loss, often due to increased energy expenditure from involuntary movements.
    • Sleep disturbances, including insomnia or irregular sleep patterns.
  • Are you ready to build your confidence, and achieve a sense of empowerment over your life?

    Then chat to our team of NDIS registered disability support service providers today. We are here to help you reach your goals for increased independence.

Contact NDIS Support Services Provider

FAQs

What is Huntington’s Disease?

Huntington’s disease (HD) is a brain disease that is passed through generations. It causes parts of the brain to stop working like they should. This condition usually appears later in life, though mild symptoms can begin years earlier. 

What are the symptoms of Huntington’s Disease?

Symptoms may include involuntary movements (chorea), coordination problems, mood or behaviour changes, difficulty thinking clearly, speech challenges, and trouble with daily activities as the condition progresses.

Is Huntington’s Disease curable?

Unfortunately, there is currently no cure for Huntington’s Disease, but medications, therapies, and supportive care can help manage symptoms and improve quality of life.

Can someone with Huntington’s Disease access NDIS support?

Yes, individuals may be eligible for NDIS funding if Huntington’s Disease significantly impacts their functional capacity and daily living. Support can include personal care, therapies, and community participation.

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