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Your Trusted NDIS Partner for Prader-Willi Syndrome Care in Perth

At Compass Care Group, we believe every individual deserves compassionate, high-quality support tailored to their unique needs. That’s why we provide specialised NDIS assistance for people living with Prader-Willi Syndrome in Perth, helping them manage daily challenges with confidence and dignity. Our experienced team understands the complexities of PWS, including developmental delays, behaviour regulation, mobility challenges, and support needs across all stages of life. Through a personalised, person-centred approach, we focus on promoting independence, enhancing wellbeing, and ensuring each participant receives the right support, therapies, and guidance to live a safe, meaningful, and empowered life under the NDIS.

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  • What is Prader-Willi Syndrome?

    NDIS Prader-Willi Syndrome

    Prader-Willi Syndrome (PWS) is a complicated genetic disorder characterised by an insatiable hunger (hyperphagia) that develops in early childhood, leading to chronic overeating and obesity if not strictly managed. PWS is a result of a genetic defect on chromosome 15; as a result, it causes physical, behavioural, and intellectual issues. 

    Because of Prader-Willi Syndrome, infants have poor muscle tone (hypotonia), feeding difficulties, and distinctive facial features; while other symptoms may include learning disabilities, distinctive facial features, and behavioural problems like temper outbursts and obsessive-compulsive behaviours.

  • Why Choose Compass Care Group For NDIS Prader-Willi Syndrome?

    • Person-Centred Approach: They are committed to providing care tailored to the individual’s specific needs, aiming to empower participants and promote independence.
    • General Disability Experience: Compass Care Group supports individuals living with intellectual, physical, sensory, cognitive, and psychosocial disabilities.
    • NDIS Registration: As a registered NDIS provider in Perth, they can offer a range of support services to help participants achieve their goals.

     

  • Benefits of Choosing Compass Care Group for Prader-Willi Syndrome

    • Improved growth: GH therapy can improve height, muscle mass, and strength.
    • Better body composition: Treatment leads to decreased fat mass and increased lean muscle mass.
    • Enhanced physical function: Early treatment can improve the strength of muscles used for feeding, potentially preventing the need for a feeding tube in infants.
    • Cognitive benefits: Studies show that children who start GH treatment earlier may have higher IQ scores.
    • Behavioural improvements: Managing the syndrome early can lead to better management of behavioural issues.
    • Growth hormone (GH) therapy: Improves body composition and growth.
    • Diet and exercise: A strict diet and regular physical activity are essential for managing weight and are often necessary alongside GH treatment.
    • Behavioural strategies: Counselling and medication can help with behavioural problems.
    • Multidisciplinary team: A team of specialists, including geneticists, endocrinologists, nurses, physical therapists, and mental health professionals, is crucial for optimising outcomes and managing the many facets of the condition.

     

    • Get the Support You Deserve: Connect with Our NDIS Expert

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  • Examples of Respiratory or Cardiac Conditions

    NDIS Prader-Willi Syndrome
    • Poor muscle tone (hypotonia): A baby with PWS may have a weak cry, weak sucking reflex, and difficulty waking up.
    • Feeding difficulties: Infancy is often marked by trouble feeding.
    • Excessive appetite (hyperphagia): This is a hallmark symptom that starts in early childhood, leading to an insatiable hunger and relentless pursuit of food.
    • Cognitive impairment: Individuals often experience mild to moderate intellectual disabilities and learning disabilities.
    • Behavioural issues: Examples include temper outbursts, stubbornness, and compulsive behaviours like picking at the skin.
    • Obsessive-compulsive behaviours: A constant preoccupation with food and eating is a common example.
    • Distinctive facial features: These can include a narrow forehead, almond-shaped eyes, and a triangular mouth.
    • Growth and puberty problems: Short stature is common, and there is often delayed or incomplete puberty, leading to hypogonadism and infertility.
    • Sleep abnormalities: Individuals may experience sleep-related breathing issues, such as sleep apnea, and excessive daytime sleepiness.
    • Other issues: Other physical symptoms can include small hands and feet, scoliosis, and vision problems like strabismus.

     

  • Are you ready to build your confidence, and achieve a sense of empowerment over your life?

    Then chat to our team of NDIS registered disability support service providers today. We are here to help you reach your goals for increased independence.

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“My support worker Rita always punctual, trained, knowledgeable, caring, and supportive. Rita helps me to achieve my NDIS goals. They have different programs which basically tailored to my needs and disabilities. I would recommend Compass Care Group. “

Mark S.

NDIS Participant

“Thank you, Matthew, for providing me wonderfulrespiteservice.They always take care of me and most importantly listen to me when I am there in one of their Respite homes. “

Adam G.

NDIS Participant

“There are no words to thank Compass Care Group for the love and support they gave to my son. No matter what I needed to know or get, they were there for me, even after hours. Their dedication to assist us is one they should be extremely proud of. You guys are awesome. “

Nancy P.

Parents

“Wesley was so kind and very efficient in helping me out in the community whenI had a fall. I would highly recommend the Compass Care Group team! “

Grace R.

NDIS Participant

“Simply I can say my daughter is happy with the support staff. They know the business and I would recommend Compass Care Group. “

Sheree W.

Parents

FAQs

What is PWS (Prader-Willi Syndrome)?

Prader-Willi Syndrome or PWS is a complex genetic disorder that affects many parts of the body, such as metabolism, growth, and behaviour. 

What are the symptoms of PWS?

Symptoms of Prader-Willi Syndrome include:

  • Weak muscle tone (hypotonia), poor feeding, poor growth, and hampered development. 
  • Extreme and constant feeling of hunger (hyperphagia), leading to overreacting and obesity if not managed. 
  • Intellectual disabilities, behavioural problems, short stature, and incomplete sexual development.

What causes PWS?

PWS is caused by genetic changes caused on Chromosome 15. Also, individuals can get PWS from inheritance, if anyone in the family has a genetic defect. 

Is PWS curable?

Unfortunately, there is no cure for PWS, but early detection and prevention can help manage symptoms and improve quality of life. 

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